Presentation: #WeAreNotWaiting: Open Source+Diabetes=Future of Healthcare?

Track: Surviving Uncertainty: GDPR, Brexit, or Politics? Beyond DR

Location: St James, 4th flr.

Duration: 1:40pm - 2:30pm

Day of week: Monday

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Abstract

What happens when an open source community develops within a group of patients with diabetes who are frustrated with their medical devices? You end up with an artificial pancreas, of course. Of course? If you're not familiar with type 1 diabetes, that may not sound like the natural conclusion. In this presentation, you will learn more about how adding technology makes people with type 1 diabetes safer - even with additional risks of automation - than the standard of care of manual adjustments for type 1 diabetes; the processes developed in the community for risk management; and how this is one of many open source communities in healthcare you'll likely hear about in the future.

Speaker: Dana Lewis

Principal Investigator & Researcher

After building her own DIY “artificial pancreas,” Dana Lewis helped found the open source artificial pancreas movement (known as “OpenAPS”), making safe and effective artificial pancreas technology available (sooner) for people with diabetes around the world. Dana has designed, coded, and tested features for the open source automated insulin delivery algorithm now used by over a thousand people worldwide, in addition to contributing thousands of lines of documentation to the open source diabetes community. She also manages the OpenAPS and Nightscout Data Commons to facilitate increased research and access to rich, anonymized, patient-generated diabetes data, and also built and maintains a set of open source analysis tools to support other researchers. Dana also serves as Principal Investigator for a Robert Wood Johnson Foundation funded grant project called “Opening Pathways” (OpeningPathways.org) to learn more about patient-led innovation and scientific discovery, and scale it in additional patient communities.

Find Dana Lewis at

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